Search thousands of topics on CostHelper.com

BROWSE ALL TOPICS >> appliances babies & children  cars  consumer electronics health & personal care home & garden personal finance  pets  schools small business weddings
CostHelper > Health & Personal Care  > Dermatology & Skin Care > Pseudoxanthoma Elasticum Treatment

Pseudoxanthoma Elasticum Treatment Cost


How Much Does Pseudoxanthoma Elasticum Treatment Cost?

 
low costMacular Degeneration Treatment: $50+ Per Doseaverage costNeck Lift: $4,000-$8,000high costFacelift: $6,000-$15,000
post E-mail post Post  

Pseudoxanthoma Elasticum[1] , or PXE, is a rare genetic disorder that causes elastic tissue in parts of the body to become mineralized, which leads to a variety of changes primarily in the skin, eyes, cardiovascular system and gastrointestinal system. Some of those changes may cause little impact while others, such as calcification of arteries or loss of vision, can be severe. Others, like sagging skin, or skin lesions can cause cosmetic concerns.

Typical costs:

  • According to the advocacy group PXE International[2] , a newly diagnosed patient should have regular physical exams by a primary care physician, as well as routine assessments by an ophthalmologist, dermatologist, and cardiologist. For patients covered by health insurance, out-of-pocket costs will typically consist of a primary doctor or specialist copay of $5 -$30 or more, or coinsurance of 10%-50% or more, per visit. For patients without health insurance, an office visit typically costs $50-$200 or more.
  • According to the book Gene Reviews[3] , current treatments for macular degeneration[4] appear to be effective for PXE-related vision problems, though there are differences between the conditions. The macular degeneration drug Lucentis (ranibizumab) costs $2,000 a dose, but a recent clinical trial[5] found the drug Avastin, which costs $50 a dose, to be just as effective.
  • Some patients may need medical intervention for gastrointestinal bleeding, which may begin with a upper gastrointestinal endoscopy, a flexible tube with an attached camera and light that's used to examine the inside of the upper digestive tract to further investigate problems. The procedure typically costs between about $1,500 -$10,000 or more for patients not covered by health insurance, depending on the provider, geographic location, whether sedation is used or not and whether the procedure is done in an imaging center or in a hospital. For patients covered by health insurance, out-of-pocket costs typically include an office visit copay and coinsurance of 10%-50%.
  • According to PXE International[6] , some patients may consider cosmetic surgery, such as a facelift or neck lift, to correct the wrinkles, folds and looseness of the skin that can be caused by PXE. Costs for a facelift usually cost $6,000-$15,000, while a neck lift typically costs between $4,000 and $8,000, depending on the patient and what needs to be done. These may be covered by health insurers as reconstructive procedures.
Related articles: Annual Physical, Genetic Consultation, Biopsy, Health Insurance

What should be included:
  • According to Gene Reviews[7] , methods used by doctors to diagnose PXE include skin biopsy[8] , looking for tell-tale changes during an examination of the retina, or genetic testing.
  • Care typically involves a multidisciplinary team and will depend on how the disorder manifests for a specific individual.
Additional costs:
  • Because PXE is an inherited disorder, experts recommend that patients and their families receive genetic counseling.
Discounts:
  • Many hospitals offer discounts of 30% of more to uninsured or cash-paying patients. At St. Joseph Hospital[9] in Orange, CA, for example, patients without health insurance may qualify for a 45% discount off billed charges. They'll also be offered an additional 10% discount if payment is made within 10 days of receiving a bill.
Shopping for pseudoxanthoma elasticum treatment:
  • The National Association for Pseudoxanthoma Elasticum offers tips to help PXE patients find the right doctors[10] .
  • PXE International offers helpful links[11] on a variety of patient topics.
Material on this page is for informational purposes only and should not be construed as medical advice. Always consult your physician or pharmacist regarding medications or medical procedures.
 
post E-mail post Post  
CostHelper News


7 Ways to Stretch Your Reduced Food Budget
End of the year budgets are tight for everyone, especially in this economy.It's especially hard for the millions of Americans who depend on government programs like food stamps to help make ends meet. || Posted November 11 2013


7 Lesser-Known Discounts for the 50+ Crowd
As they age, members of the Baby Boomer generation don't like to admit that they're senior citizens, but they love getting discounts. It's kind of a quandary, because some of the best deals available are reduced prices for older folks. || Posted October 21 2013

‣ All CostHelper Blog Posts


What People Are Paying - Recent Comments


 

Comment On Your Experience With Pseudoxanthoma Elasticum Treatment
 
Subject:  *
Amount Spent:  *
Type of Treatment: Affected Area: 
Comments: 
Purchased:  Year: 
City:  * State:  *
 
Information about you:
Email:  * Email addresses are not displayed.
Name:  This is the name we'll display with your post.
me on this computer
*=required field.
 



External Resources:
  1.  www.pxe.org/what-pxe
  2.  www.pxe.org/what-pxe#What_are_effects_
  3.  www.ncbi.nlm.nih.gov/books/NBK1113/
  4.  my.clevelandclinic.org/disorders/macular_degeneration/hic_macular_degeneration.aspx
  5.  www.nih.gov/news/health/apr2012/nei-30a.htm
  6.  www.pxe.org/plastic-surgery-considered
  7.  www.ncbi.nlm.nih.gov/books/NBK1113/
  8.  www.webmd.com/cancer/skin-biopsy
  9.  www.sjo.org/For-Patients/Your-Hospital-Bill/Self-Pay-Discount-Program.aspx
  10.  www.pxenape.org/articles/How-to-Find-a-Doctor.htm
  11.  www.pxe.org/links
More Health & Personal Care Topics
Check Out All Costs for Health & Personal Care How Much Does an Emergency Room Visit Cost? How Much Does an X-Ray Cost? How Much Do Body Piercings Cost?

Search Thousands of Topics on CostHelper.com

 
Today's Featured Cost Articles

About CostHelper
CostHelper is based in Silicon Valley and provides consumers with unbiased price information about thousands of goods and services. Our writers are experienced journalists who adhere to our strict editorial ethics policy.

CostHelper Community
Sinus Infections - Steroid shot and sent home
Paid: 2753.00
I woke up having breathing problems. I went to nearby non-hospital THH office. Nurse took blood pressure and temperature. Dr came in the room and spent less than 10 minutes and stated I had sinus infection... [more]
-Bill Moore
Emergency Room Visit Cost
Mold Testing Pacific Palisades, CA
Paid: 800.00
It cost us 800. We were pleased with Knight Environmental consulting who we hired. They were very thorough. Friendly and respectful of our home.They checked everywhere in our 7000ft home and tested the air... [more]
-AMY SCHWARTZ
Mold Inspection Cost
extraction
Paid: 739.00
Had 3 extractions yesterday. The cost was 304.00 each extraction but with some kind of insurance plan you could get 30% off. The plan was 75.00 annually and came at a huge savings on the work as my final cost with the plan was 814... [more]
-Dental mess
Tooth Extraction Cost
McHenry MD - Suburban Propane
Paid: 3300.00
Just got my bill and in 5 weeks we supposedly used 356 gals. Hard to do when you are not there the entire time and you turned the thermostat to 60. They charged $.35 more per gallon then from 5 weeks ago. $3.42 per gallon... [more]
-Check your bill with Suburban
Propane Tank Cost
Laceration from stick
Paid: 25.00
Slipped and fell on a stick while running around on a hill, and recieved 2 lacerations on my right leg, one about an inch long and one about 2 inches long. Called my insurance asap (Kaiser) and they directed me to one of their Urgent Cares... [more]
-
Stitches Cost
Urinalysis was asked of me
Paid: 3920.00
This was supposed to cost $250. Total!$3,675. for a urinalysis. Not mentioned anywhere on ANY search was this required to get a card... [more]
-Nellie28
Medical Marijuana Card Cost