Search thousands of topics on CostHelper.com

BROWSE ALL TOPICS >> babies & children  cars  consumer electronics health & personal care home & garden personal finance  pets  schools small business sports weddings
CostHelper > Health & Personal Care  > Medical Specialties & Departments > Muscular Dystrophy Treatment

Muscular Dystrophy Treatment Cost


How Much Does Muscular Dystrophy Treatment Cost?

 
average costWith Health Insurance: 10%-50% Coinsurance plus Copayshigh costWithout Health Insurance: Can Reach $20,000/year, to over $300,000/year
post Post    

Muscular dystrophy is a group of inherited conditions that cause muscle weakness and loss. Muscular dystrophy can lead to problems doing daily tasks, walking and breathing. Some types of muscular dystrophy occur in childhood, while others do not appear until adulthood.

Typical costs:

  • For patients covered by health insurance, out-of-pocket costs for muscular dystrophy treatment typically consist of doctor visit, lab and prescription drug copays of 10%-50%. Muscular dystrophy treatment typically is covered by health insurance, although individual drugs or treatments might not be covered by some plans. Costs can easily reach the out-of-pocket maximum.
  • For patients not covered by health insurance, direct medical costs of muscular dystrophy treatment can reach $20,000 or more per year. As the disease progresses, costs can reach more than $300,000 a year if ventilation is required.
  • For example, DrugsDepot.com charges less than $20 for a one-month supply of the generic corticosteroid prednisone.
  • Physical therapy, which often is prescribed for muscular dystrophy patients to improve strength and flexibility, can cost $50 to $350 per session. Speech therapy can cost $200 to $250 for an initial assessment, then $100 to $250 an hour.
  • At SpinLife.com, power wheelchairs[1] cost $1,500 to $5,000 or more. At SpinLife.com, and electric patient lifts[2] cost about $1,000 to more than $6,000.
  • A study[3] found that the average annual direct medical costs for a patient with muscular dystrophy are more than $22,000 a year. But costs can go much higher. A tracheostomy can cost as much as $150,000. Many patients eventually require a tracheostomy and ventilator. Invasive ventilation[4] can cost $150,000-$330,000-plus per year, mostly for home health care, according to the ALS Hope Foundation.
Related articles: Physical Therapy, Speech Therapy, Tracheostomy, Genetic Consultation

What should be included:
  • Treatment is tailored to the individual, based partly on the type of muscular dystrophy. There are nine types of muscular dystrophy[5] , each of which has different features and can strike at different ages, from infancy to middle age and beyond
  • A doctor might prescribe a corticosteroid such as prednisone to try to slow the progress of the disease.
  • Respiratory function should be monitored proactively, so problems can be addressed early. Patients with muscular dystrophy typically develop muscle weakness in the chest that leads to problems coughing and breathing. Most patients eventually need non-invasive ventilation, which is ventilation delivered through the nose or mouth -- or invasive ventilation, which is delivered through a hole created surgically in the throat.
  • Many patients develop problems swallowing and eating and can choke on food. It is important to take a proactive approach to nutrition. In some cases, a patient might need a gastronomy tube.
  • Some types of muscular dystrophy can lead to heart problems. It is important that patients be monitored by a cardiologist.
  • Physical therapy and speech therapy typically are needed for patients with muscular dystrophy. The Muscular Dystrophy Association offers a guide to muscular dystrophy care[6] .
Additional costs:
  • It is recommended that anyone with a family history of muscular dystrophy consider a genetic consultation before having children. A genetic consultation can cost $150 or more per hour.
Discounts:
  • Shriners Hospitals for Children provide free muscular dystrophy care[7] for qualifying children, based on medical need.
  • The Muscular Dystrophy Association provides lightly used medical equipment such as wheelchairs and lifts to qualifying patients with neuromuscular disease. The equipment is provided by local chapters, and the MDA website offers a local chapter locator[8] .
Shopping for muscular dystrophy treatment:
  • Patients with muscular dystrophy typically receive care from a team of doctors and other health professionals that would include a neurologist, a cardiologist, an orthopedic surgeon, a physical therapist, occupational therapist and speech therapist. The Muscular Dystrophy Association offers a clinic locator[9] to find facilities that specialize in the treatment of muscular dystrophy.
Material on this page is for informational purposes only and should not be construed as medical advice. Always consult your physician or pharmacist regarding medications or medical procedures.
 
post Post    
CostHelper News


Forgotten Expenses In a Home Addition Budget
Items like construction costs, permit fees or debris removal aren't the only expenses to consider when calculating the total costs of a home remodeling project. || Posted August 5 2013


10 Most Popular Cosmetic Procedures Before the Holidays
With reunions and other get-togethers scheduled during the holiday season, most people want to look their best at this time of year. For some, that means filling in those wrinkles with a bit of botox, or having a nip and tuck down here and there. || Posted November 23 2013

‣ All CostHelper Blog Posts


What People Are Paying - Recent Comments


 

Comment On Your Experience With Muscular Dystrophy Treatment
 
Subject:  *
Amount Spent:  *
Treatment: Medical Center: 
Insurance:   
Comments: 
Purchased:  Year: 
City:  * State:  *
 
Information about you:
Email:  * Email addresses are not displayed.
Name:  This is the name we'll display with your post.
me on this computer
*=required field.
 



External Resources:
  1.  www.spinlife.com/critpath/match.cfm?categoryID=629
  2.  www.spinlife.com/critpath/match.cfm?categoryID=110
  3.  apha.confex.com/apha/139am/webprogram/Paper248740.html
  4.  www.alshopefoundation.org/understanding-als/respiratory-management.php
  5.  www.hopkinsmedicine.org/healthlibrary/conditions/nervous_system_disorders/types_of_musc...
  6.  mda.org/publications/congenital-muscular-dystrophy-care-guidelines
  7.  www.shrinershospitalsforchildren.org/en/CareAndTreatment/Orthopaedics/MuscularDystrophy...
  8.  mda.org/locate
  9.  mda.org/locate
More Health & Personal Care Topics
Check Out All Costs for Health & Personal Care How Much Does a Flu Shot Cost? How Much Does Teeth Cleaning Cost? How Much Does an Ambulance Cost?

Search Thousands of Topics on CostHelper.com

 
Today's Featured Cost Articles

About CostHelper
CostHelper is based in Silicon Valley and provides consumers with unbiased price information about thousands of goods and services. Our writers are experienced journalists who adhere to our strict editorial ethics policy.

CostHelper Community
Sunroom Patio Enclosures
Paid: 56000.00
14x16 gable roof 3 season room 4 season was $75,000 includes new deck gable roof shingled with skylights... [more]
-ROBERT PETERS
Sunroom Cost
20% Rear, 35% Front, 70% Windshield + "Free" Sunroof
Paid: 500.00
Got a few quotes around town. This place low balled me to get me in the door, but I already knew I'd want more premium grade tint. Office was friendly and explained my options well... [more]
-Butchy45
Window Tinting Cost
I want ship my car to Germany
Paid: 1000.00
I want ship my car to Germany from Washington state,in a rang$1000 it is Honda Civic 2015... [more]
-Nicolae
Shipping a Car Overseas Cost
How much should we be paying?
Paid: 0.00
Two buildings. Each are two stories, 4 bathrooms, 1 kitchen, several offices and common areas... [more]
-T-Clean
Office Cleaning Cost
compressor/coil/fan box replacement
Paid: 23371.00
The WaterFurnace equivalent model was $4,200 in 2009. Even it was a replacement for the original when the house was built in 2002. This time I definitely now think I got a raw deal here... [more]
-Gary Williams
Geothermal Heat Pump Cost
Baby shower
Paid: 3000.00
I started planning my daughters baby shower 4mon in advance. I hand made every thing from invites to decor. I made all my own flower centerpieces as well. I had the food and beverage catered in... [more]
-Katdnpedro
Baby Shower Cost